St. Patrick’s Day: 3 Things We are Lucky to Have as Americans

  1. Let's hope for some luck of the Irish!

    HTC: We are Lucky because the federal  government in the USA successfully demanded that all persons in the USA who have hemophilia should be identified followed by a heath care plan for each individual. The first step in establishing good medical care is the identification of those who need it. In 1976 The Children’s Bureau of Health and Human Services  established and funded the Hemophilia Treatment Centers (HTC) in each of the ten Health Region of the country. Before then, many patients in the USA were not identified and did not receive adequate care.

  1. AHF:  We are lucky in the U.S. because we have a pharmaceutical industry where innovation in the development of medicines flourishes.  Research and development of AHF clotting Factors has resulted in the production of safe plasma-derived AHF and recombinant AHF for both Factor VIII and Factor IX types of hemophilia. The availability of replacement AHF therapy has increased life expectancy. Improvement in the quality of life for persons who have hemophilia includes dental and surgical procedures, regular attendance at school, ability to maintain employment, marriage, raising and supporting a family.
  1. Source of AHF: We are lucky to have a system of distribution and availability of AHF.  A medicine that is not available or that is unaffordable is useless.  A responsibility of the HTC is to recognize the need of AHF for hemophilia patients and to identify a method of payment for the cost of the medicine.  For each patient a reliable source of AHF is identified. No person who has hemophilia should lack medicine because of the cost of the medicine.   The availability of replacement AHF for infusions at home allows a patient to assume independence and responsibility accompanied by freedom and control of their lives.

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